Uber busy day. Baby cakes this AM .. and leaving just past noon to pick up Nathan; he needs an official evaluation for his disability case as he transitions to adult services. Yesterday .. much the same with stopping in to get him on the 'list' for vocational rehabilitation for when he turns 21 in three years (that's how long it takes to get services at the proper age). Stopped at the pediatrician's office as well to get his annual physical scheduled before he turns 18 and I'm no longer his parent authority. That means we are also timing the process of guardianship so when his birthday arrives he's in line for legal services to hear his case before the court so we can obtain legal guardianship. As a parent you really need to stay on top of this, and timing is everything. Oh my, prayers appreciated that no major medical event arises between now and the court hearing. My mind is spinning! The HIPPA law has certainly confounded being the parent of a handicapped child transitioning into adulthood!
2 comments:
Wow. You do have to have a plan. It boggles the mind...there you have a child's parents, willing to lay their lives down for their child at no cost to anyone but themselves. And they have to jump through hoops to do it.
It always stuns me how before our children are born, our medical system works hard to bring us together, but as soon as they get to be teens, they are set to separate us.
Not in the best interest of any child, who is not mature or knowledgeable enough to make these medical or other decisions for themselves.
Sad.
Prayers for you and Nathan.
Praying Cathy...it is sad that a parent, has to do all of this to make decisions for their child in adulthood. Big hugs.
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